By Nancy Degnan

Jawanda Hargrove has a full life taking care of her son, enjoying her family, and going to work each day. When you meet Jawanda, you find a caring person with great expression.
“I have a job, a son and a family. I have a life I want to be here for and I am passionate about it; it is my life.”
The “it” that Jawanda references is sickle cell disease.
At eight months old, Jawanda was diagnosed with sickle cell disease. As her hands and feet began to swell, her parents took her to be treated and received the news. Jawanda is thankful for her ability to attend school and graduate with her class due to diligent parents and the support of Children’s Hospital of Philadelphia (CHOP). CHOP creates a packet about sickle cell disease that helped to educate Jawanda’s community beyond her parents and her home.
“CHOP helped me medically and socially,” Jawanda shared.
With all the challenges presented to Jawanda, she is always appreciative.
Blood transfusions saved my life
An exciting next step was happening for Jawanda as she prepared to bring new life into the world. As a sickle cell disease patient, she knew she was immediately considered high risk.
“I had a normal pregnancy, until it wasn’t,” Jawanda said.
Jawanda’s son was born seven weeks premature. While Jawanda’s son was in the neonatal unit receiving care, Jawanda went into a sickle cell disease crisis. Her hemoglobin plummeted, and she was in the hospital for four days. Blood transfusions saved Jawanda’s life.
Going above and beyond
“If you were to look at me, I do not present as sick,” says Jawanda.
Sickle cell disease causes red blood cells to be hard and crescent-shaped – like a sickle – instead of soft and round, making it difficult for blood to flow smoothly and carry oxygen adequately to the rest of the body. Patients can experience complications such as severe pain, anemia, infections, stroke and organ damage. Blood transfusions are the primary treatment for individuals living with sickle cell disease.
For Jawanda, educating the medical professionals and the public about sickle cell disease is key to ensuring the disease state is recognized. Jawanda plays an active role in providing education about sickle cell disease and has compassion for others that are living with the disease. She takes time out of her busy schedule to humanize patients with the disease by talking with health care professionals (first year residents) at Penn Hospital as a person, not a patient. Her hope is when a sickle cell disease patient presents at the emergency room or hospital, they will be met with a prepared medical staff with awareness of the symptoms leading to quick action – the need for life giving blood.
When asked what she would say to someone giving blood, Jawanda replied, “Thank you for saving lives.” She also noted the importance of having blood donations from the African American population because patients who require regular blood transfusions are best served when blood donors are more closely matched to their own.
Editor’s Note: In commemoration of Black History Month, the American Red Cross is joining organizations across the country to focus on the importance of health and wellness in our Black communities. Throughout February, we’ll be sharing information about our Sickle Cell Initiative, stories from those impacted by sickle disease and ways that community residents can help.












